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伍麗華Saidhai Tahovecahe @ 第11屆第5會期教育及文化委員會第21次全體委員會議
| Start Time | End Time | Text |
|---|---|---|
| 00:00:05,870 | 00:00:06,950 | 謝謝主席 |
| 00:00:06,950 | 00:00:07,790 | 有請院長 |
| 00:00:08,570 | 00:00:09,690 | 有請院長 |
| 00:00:13,140 | 00:00:13,820 | 張委好 |
| 00:00:13,820 | 00:00:14,620 | 院長好 |
| 00:00:15,460 | 00:00:18,060 | 擔任委員會的趙委 |
| 00:00:18,060 | 00:00:21,500 | 我要先特別的來肯定您 |
| 00:00:21,500 | 00:00:25,340 | 因為您在六月二十一日到職之後呢 |
| 00:00:25,340 | 00:00:29,700 | 其實中研院很主動的來洽詢 |
| 00:00:29,700 | 00:00:33,820 | 是不是要安排院長來做業務報告 |
| 00:00:33,820 | 00:00:37,380 | 那其實也可以選擇在下個會期 |
| 00:00:37,380 | 00:00:41,700 | 但是這樣的一個主動的精神讓我覺得非常的感佩 |
| 00:00:41,700 | 00:00:42,780 | 謝謝院長 |
| 00:00:42,780 | 00:00:44,060 | 那當然呢 |
| 00:00:44,100 | 00:00:47,620 | 面對大家對於新上任的院長的期許 |
| 00:00:47,620 | 00:00:51,140 | 其實我個人是認為您是人辱負重 |
| 00:00:51,140 | 00:00:54,980 | 因為我們都知道您是天主教的聖騎士 |
| 00:00:54,980 | 00:00:56,100 | 那聖騎士呢 |
| 00:00:56,100 | 00:01:01,420 | 其實最主要的一個靈魂核心就是犧牲的精神 |
| 00:01:01,420 | 00:01:02,420 | 那這個犧牲呢 |
| 00:01:02,420 | 00:01:04,860 | 其實他有兩個價值 |
| 00:01:04,860 | 00:01:06,460 | 一個叫做憐憫 |
| 00:01:06,460 | 00:01:07,940 | 一個叫公正 |
| 00:01:07,940 | 00:01:09,220 | 那簡單的來講 |
| 00:01:09,220 | 00:01:12,060 | 所謂的犧牲在天主教的定義呢 |
| 00:01:12,060 | 00:01:16,700 | 就是願意為大義而承受損失的覺悟 |
| 00:01:16,700 | 00:01:17,340 | 所以呢 |
| 00:01:17,340 | 00:01:19,140 | 今天看到您站在這裡 |
| 00:01:19,140 | 00:01:24,340 | 有這麼豐厚的一個行政經歷跟學術的經驗 |
| 00:01:24,340 | 00:01:28,260 | 我相信在領航中研院這條道路上 |
| 00:01:28,260 | 00:01:31,620 | 有很重要的一個美意在前方 |
| 00:01:31,620 | 00:01:33,140 | 那請您加油 |
| 00:01:33,140 | 00:01:36,700 | 那我在這邊其實還是科學要實事求是 |
| 00:01:36,700 | 00:01:41,140 | 我比較關心的就是有關我們原住民的一些議題 |
| 00:01:41,140 | 00:01:42,900 | 我在去年年底 |
| 00:01:42,900 | 00:01:43,900 | 有看到 |
| 00:01:44,640 | 00:01:47,880 | 中研院有一個很了不起的成就 |
| 00:01:47,880 | 00:01:52,000 | 就是你們做的台灣精準醫療計畫 |
| 00:01:52,000 | 00:01:56,800 | 刊登了國際最頂尖的期刊Nature |
| 00:01:56,800 | 00:01:58,080 | 那我看了內容呢 |
| 00:01:58,080 | 00:02:01,920 | 發現你們建立的是漢人的基因庫 |
| 00:02:01,920 | 00:02:05,520 | 他是東亞最大的本土基因資料庫 |
| 00:02:05,520 | 00:02:07,800 | 那對我們國人 |
| 00:02:07,800 | 00:02:11,680 | 其實應該說漢人健康風險的預測呢 |
| 00:02:11,720 | 00:02:14,800 | 這是一個非常重要的一個基石 |
| 00:02:14,800 | 00:02:17,360 | 所以當時我質詢就是很羨慕 |
| 00:02:17,360 | 00:02:18,840 | 我就納悶說 |
| 00:02:18,840 | 00:02:21,440 | 為什麼不幫我們原住民做 |
| 00:02:21,440 | 00:02:22,440 | 為什麼呢 |
| 00:02:22,440 | 00:02:26,880 | 因為我其實在112年的6月 |
| 00:02:26,880 | 00:02:30,560 | 就是原住民族健康法講了10年 |
| 00:02:30,560 | 00:02:33,600 | 終於在112年的6月三讀通過 |
| 00:02:33,600 | 00:02:36,240 | 那其中有一個最重要的就是要建置 |
| 00:02:36,240 | 00:02:38,600 | 原住民族的健康資料庫 |
| 00:02:38,600 | 00:02:40,720 | 那我們非常在意這件事情 |
| 00:02:40,760 | 00:02:41,560 | 所以呢 |
| 00:02:41,560 | 00:02:42,440 | 當時呢 |
| 00:02:42,440 | 00:02:44,200 | 我在5月又再一次的 |
| 00:02:44,200 | 00:02:46,920 | 因為我在預算會期沒有看到 |
| 00:02:46,920 | 00:02:48,880 | 所以我又問了廖院長 |
| 00:02:48,880 | 00:02:51,400 | 那我希望就是可以加入 |
| 00:02:51,400 | 00:02:54,160 | 那當時廖院長的回應是說 |
| 00:02:54,160 | 00:02:56,440 | 他覺得這是非常好的一件事 |
| 00:02:56,440 | 00:02:59,240 | 他也希望原民會跟委員們 |
| 00:02:59,240 | 00:03:01,680 | 能夠大力的支持推動 |
| 00:03:01,680 | 00:03:05,440 | 所以這個平台到底要由誰來召開 |
| 00:03:05,440 | 00:03:07,120 | 那當時廖院長說 |
| 00:03:07,120 | 00:03:10,160 | 要看看行政院有什麼樣的構想 |
| 00:03:10,160 | 00:03:10,720 | 因此呢 |
| 00:03:10,720 | 00:03:14,359 | 我也來召開了第一次的相關協調會 |
| 00:03:14,359 | 00:03:17,560 | 那我在5月26號的大院總質詢 |
| 00:03:17,560 | 00:03:19,880 | 我也去問了這個問題 |
| 00:03:19,880 | 00:03:21,960 | 那到底是由誰來召開 |
| 00:03:21,960 | 00:03:22,960 | 那因為呢 |
| 00:03:22,960 | 00:03:26,320 | 我們看到中研院很願意承擔 |
| 00:03:26,320 | 00:03:26,760 | 所以呢 |
| 00:03:26,760 | 00:03:29,920 | 我也在6月4號召集了中研院 |
| 00:03:29,920 | 00:03:32,960 | 還有國衛院原民會衛福部 |
| 00:03:32,960 | 00:03:35,200 | 一起就這個部分來討論 |
| 00:03:35,200 | 00:03:36,640 | 那討論的過程中 |
| 00:03:36,640 | 00:03:38,240 | 就是要讓院長知道 |
| 00:03:38,280 | 00:03:40,200 | 因為我才知道說 |
| 00:03:40,200 | 00:03:41,840 | 原來不容易是因為這個 |
| 00:03:41,840 | 00:03:43,440 | Taiwan Belt Bank |
| 00:03:43,440 | 00:03:45,440 | 其實原住民的相關研究 |
| 00:03:45,440 | 00:03:47,080 | 除了要符合這個 |
| 00:03:47,080 | 00:03:50,320 | 人體研究倫理審查委員會的一個規範 |
| 00:03:50,320 | 00:03:53,720 | 他還要經過原住民組研究倫理的審查 |
| 00:03:53,720 | 00:03:54,440 | 同意 |
| 00:03:54,440 | 00:03:55,640 | 所以很不容易 |
| 00:03:55,640 | 00:03:58,160 | 那即便是台灣精準醫療計畫 |
| 00:03:58,160 | 00:04:00,040 | 因為他是擷取基因 |
| 00:04:00,040 | 00:04:01,640 | 那我們也很擔心說 |
| 00:04:01,640 | 00:04:04,000 | 這個結果容易導向歧視 |
| 00:04:04,000 | 00:04:06,360 | 所以也必須要非常的小心 |
| 00:04:06,360 | 00:04:07,400 | 那我特別高興 |
| 00:04:07,440 | 00:04:08,880 | 就是您上任了之後 |
| 00:04:08,880 | 00:04:10,160 | 真的見急履急 |
| 00:04:10,160 | 00:04:11,120 | 好快 |
| 00:04:11,120 | 00:04:12,920 | 6月29號 |
| 00:04:12,920 | 00:04:16,040 | 秘書長他就親自跟國衛院 |
| 00:04:16,040 | 00:04:17,519 | 就找了幾個所 |
| 00:04:17,519 | 00:04:20,360 | 就一同開了第一次的工作協調會 |
| 00:04:20,360 | 00:04:24,320 | 就是針對原住民的精準健康研究計畫 |
| 00:04:24,320 | 00:04:27,200 | 那我今天來這邊其實就是想要問一下 |
| 00:04:27,200 | 00:04:28,520 | 那到底結果如何 |
| 00:04:29,800 | 00:04:33,400 | 那個精準健康研究的這個部分 |
| 00:04:33,400 | 00:04:36,040 | 謝謝委員對原住民的這個關心 |
| 00:04:36,040 | 00:04:37,280 | 而且原住民組 |
| 00:04:37,280 | 00:04:41,440 | 因為在台灣是很多多個族裔 |
| 00:04:41,440 | 00:04:42,360 | 那所以呢 |
| 00:04:42,360 | 00:04:43,560 | 在這一個研究上 |
| 00:04:43,560 | 00:04:49,720 | 確實是需要有相關的比較嚴謹的這樣的規劃 |
| 00:04:49,720 | 00:04:54,640 | 但是精準健康不只是利用基因體的資料來做 |
| 00:04:54,640 | 00:04:58,400 | 用蛋白質體血的資料來做的話 |
| 00:04:58,440 | 00:05:02,080 | 實際上也可以做很好的精準健康的研究 |
| 00:05:02,080 | 00:05:03,000 | 所以未來呢 |
| 00:05:03,000 | 00:05:07,000 | 我們會怎麼樣整合更好的團隊 |
| 00:05:07,000 | 00:05:09,719 | 來對原住民健康的這個促進 |
| 00:05:09,719 | 00:05:11,880 | 精準健康的促進來做研究 |
| 00:05:11,880 | 00:05:15,760 | 那在基因體學的部分 |
| 00:05:15,760 | 00:05:18,080 | 確實我們需要有氣老 |
| 00:05:18,080 | 00:05:20,440 | 還有部落長老們的同意 |
| 00:05:20,440 | 00:05:23,000 | 那這個部分我們需要再協調 |
| 00:05:23,000 | 00:05:24,880 | 那當然中央研究院責無旁貸 |
| 00:05:24,880 | 00:05:26,640 | 如果我們要這樣做 |
| 00:05:26,680 | 00:05:29,159 | 我們願意跟相關的原民會 |
| 00:05:29,159 | 00:05:30,360 | 還有相關的部會 |
| 00:05:30,360 | 00:05:31,440 | 一起來努力 |
| 00:05:31,440 | 00:05:36,080 | 那這一次的協調工作匯報的這個情形的話 |
| 00:05:36,080 | 00:05:38,880 | 是我們是不是請秘書長簡單說明 |
| 00:05:38,880 | 00:05:39,280 | 好謝謝 |
| 00:05:39,280 | 00:05:40,320 | 有請秘書長 |
| 00:05:40,320 | 00:05:41,760 | 跟國務委員簡單說明 |
| 00:05:41,760 | 00:05:44,039 | 我們第一個是成立了一個工作小組 |
| 00:05:44,039 | 00:05:48,919 | 那就是由這個國務院的這個原住民健康研究中心 |
| 00:05:48,919 | 00:05:52,000 | 還有中醫院的這個台灣精準醫療計畫 |
| 00:05:52,000 | 00:05:55,240 | 還有台灣人體生物資料庫 |
| 00:05:55,280 | 00:05:57,320 | 還有統計所 |
| 00:05:57,320 | 00:05:59,080 | 共同成立這樣的一個工作小組 |
| 00:05:59,080 | 00:06:01,440 | 那我們目前的第一個決議就是說 |
| 00:06:01,440 | 00:06:04,840 | 我們先盤點這個國務院的資料 |
| 00:06:04,840 | 00:06:06,560 | 還有中醫院台灣保護病 |
| 00:06:06,560 | 00:06:09,600 | 還有台灣精準醫療計畫的 |
| 00:06:09,600 | 00:06:13,800 | 目前的這個有關原民的收案的一個狀況 |
| 00:06:13,800 | 00:06:15,160 | 那目前我們知道 |
| 00:06:15,160 | 00:06:17,320 | 台灣人體生物資料庫20萬收案 |
| 00:06:17,320 | 00:06:20,280 | 當中有3600位有原民身份 |
| 00:06:20,280 | 00:06:22,600 | 然後TPMI的56萬人當中 |
| 00:06:23,560 | 00:06:25,640 | 估計大概有3萬人這樣子 |
| 00:06:25,640 | 00:06:29,640 | 那我們會先從國務院跟中醫院內部 |
| 00:06:29,640 | 00:06:31,120 | 先成立一個計畫 |
| 00:06:31,120 | 00:06:36,640 | 來先針對目前台灣保護病跟TPMI已經有的資料 |
| 00:06:36,640 | 00:06:38,040 | 我們先做一個盤整 |
| 00:06:38,040 | 00:06:41,280 | 然後我們也會先選幾個這個重要的疾病 |
| 00:06:41,280 | 00:06:42,920 | 我們先來做一個評估 |
| 00:06:42,920 | 00:06:44,880 | 然後再做後續的動作 |
| 00:06:44,880 | 00:06:48,440 | 那目前第二次的會議會在8月11號辦理 |
| 00:06:49,230 | 00:06:54,750 | 另外也請了這個東華大學的這個Awimona這個院長 |
| 00:06:54,750 | 00:06:57,190 | 會來協助我們相關工作的進行 |
| 00:06:57,190 | 00:06:59,230 | 那後續會再跟委員這邊來說明 |
| 00:06:59,230 | 00:07:01,070 | 好非常感謝 |
| 00:07:01,070 | 00:07:04,030 | 院長我這樣聽起來就是已經有旋律 |
| 00:07:04,030 | 00:07:06,270 | 已經開始了有譜了 |
| 00:07:06,270 | 00:07:07,470 | 那非常的開心 |
| 00:07:07,470 | 00:07:09,030 | 那我也希望說 |
| 00:07:09,030 | 00:07:11,950 | 我也繼續來追蹤執行的進度 |
| 00:07:11,950 | 00:07:14,110 | 也希望一個月內 |
| 00:07:14,110 | 00:07:16,070 | 給我提出一個書面報告 |
| 00:07:16,110 | 00:07:17,469 | 讓我了解 |
| 00:07:17,469 | 00:07:20,190 | 來看未來怎麼繼續 |
| 00:07:20,190 | 00:07:22,390 | 那我再給我一分鐘的時間 |
| 00:07:22,390 | 00:07:25,310 | 院長其實我也很關心民主所 |
| 00:07:25,310 | 00:07:29,230 | 因為我經常參與的就是民主所的活動 |
| 00:07:29,230 | 00:07:31,510 | 那我知道的是在2020年的時候 |
| 00:07:31,510 | 00:07:33,789 | 也是我擔任立委的第一年 |
| 00:07:33,789 | 00:07:37,830 | 其實在我們民主所有跟家平 |
| 00:07:37,830 | 00:07:39,750 | 泰晤鄉的一個家平村 |
| 00:07:39,750 | 00:07:43,670 | 有一個Gavilan的一個回家的工作站 |
| 00:07:43,670 | 00:07:45,990 | 當時就是非常多 |
| 00:07:45,990 | 00:07:48,270 | 把中研院收藏這個家平 |
| 00:07:48,270 | 00:07:50,990 | 36件的文物做了一個展覽 |
| 00:07:50,990 | 00:07:52,750 | 那之後也非常好 |
| 00:07:52,750 | 00:07:54,470 | 有建置了一些 |
| 00:07:54,470 | 00:07:56,950 | 例如像是一個錄音檔 |
| 00:07:56,950 | 00:07:58,950 | 那用不同的一個語音 |
| 00:07:58,950 | 00:08:01,150 | 甚至年輕人也加入 |
| 00:08:01,150 | 00:08:05,390 | 把這些文物做一個很好的網路的介紹 |
| 00:08:05,390 | 00:08:07,990 | 那但是我知道的是最近 |
| 00:08:07,990 | 00:08:10,910 | 我們家平部落想要延續 |
| 00:08:10,910 | 00:08:12,110 | 為什麼要延續 |
| 00:08:12,110 | 00:08:14,270 | 因為結盟不是一次 |
| 00:08:14,270 | 00:08:15,510 | 如果一次的話 |
| 00:08:15,510 | 00:08:18,230 | 那就真的是好像做作樣子 |
| 00:08:18,230 | 00:08:19,310 | 應付了事 |
| 00:08:19,310 | 00:08:20,870 | 那我非常高興 |
| 00:08:20,870 | 00:08:23,990 | 接續他們有把36卷 |
| 00:08:23,990 | 00:08:26,070 | 在第一個Mama Zangilan頭目 |
| 00:08:26,070 | 00:08:27,750 | 周林義志先生 |
| 00:08:27,750 | 00:08:29,310 | 他的口述卡帶 |
| 00:08:29,310 | 00:08:31,270 | 要捐贈給中研院 |
| 00:08:31,270 | 00:08:35,030 | 因為他們相信中研院有好的保存的方式 |
| 00:08:35,030 | 00:08:37,750 | 也有好的科技處理的方式 |
| 00:08:37,750 | 00:08:41,069 | 那在這裡我就是要提醒一件事 |
| 00:08:41,069 | 00:08:43,789 | 因為像台大他們有一次 |
| 00:08:43,829 | 00:08:44,870 | 跟美國的這個 |
| 00:08:44,870 | 00:08:47,390 | Kamahamaha的一個交流 |
| 00:08:47,390 | 00:08:50,510 | 那他們就訂定了一個雙方護航 |
| 00:08:50,510 | 00:08:52,589 | 還有一個交流的一個 |
| 00:08:52,589 | 00:08:54,469 | 一系列的一個形式 |
| 00:08:54,469 | 00:08:55,630 | 但是呢 |
| 00:08:55,630 | 00:08:58,150 | 在上次的太平洋藝術節 |
| 00:08:58,150 | 00:08:59,990 | 好多的台灣 |
| 00:08:59,990 | 00:09:01,550 | 還有世界各地的族人 |
| 00:09:01,550 | 00:09:03,189 | 到那個地方去參與 |
| 00:09:03,189 | 00:09:04,550 | 結果有一個活動 |
| 00:09:04,550 | 00:09:06,670 | 只有這個家平 |
| 00:09:06,670 | 00:09:09,550 | 他們有被主動的邀請入內 |
| 00:09:09,550 | 00:09:11,589 | 參與他們的這個儀式 |
| 00:09:11,589 | 00:09:12,910 | 那大家都很驚訝 |
| 00:09:12,949 | 00:09:14,189 | 憑什麼是他們 |
| 00:09:14,189 | 00:09:15,910 | 有很多很多的國家 |
| 00:09:15,910 | 00:09:18,829 | 很多的台灣的團隊參加 |
| 00:09:18,829 | 00:09:21,630 | 因為他們有跟他們做結盟 |
| 00:09:21,630 | 00:09:22,110 | 所以呢 |
| 00:09:22,110 | 00:09:23,430 | 原住民之間 |
| 00:09:23,430 | 00:09:26,390 | 世界原住民之間這種結盟的儀式 |
| 00:09:26,390 | 00:09:28,069 | 是長長久久的 |
| 00:09:28,069 | 00:09:30,870 | 而且是非常有實質性的意義 |
| 00:09:30,870 | 00:09:31,510 | 所以呢 |
| 00:09:31,510 | 00:09:33,589 | 我就是特別希望說 |
| 00:09:33,589 | 00:09:35,589 | 這一次的這個結盟 |
| 00:09:35,589 | 00:09:39,069 | 我也很希望能夠在兩週內可以回覆我 |
| 00:09:39,069 | 00:09:40,350 | 關於規劃 |
| 00:09:40,350 | 00:09:42,270 | 還有雙方護會的模式 |
| 00:09:42,310 | 00:09:44,030 | 還有這個口述錄音檔 |
| 00:09:44,030 | 00:09:46,310 | 他未來的典藏跟推廣計畫 |
| 00:09:46,310 | 00:09:47,350 | 那院長可以嗎 |
| 00:09:47,350 | 00:09:48,270 | 好可以 |
| 00:09:48,270 | 00:09:51,949 | 那我們實際上也安排在8月15號到16號 |
| 00:09:51,949 | 00:09:54,670 | 民族所跟家平部落的家族 |
| 00:09:54,670 | 00:09:56,189 | 會有一個結盟的儀式 |
| 00:09:56,189 | 00:09:57,550 | 那到時候也希望 |
| 00:09:57,550 | 00:09:58,630 | 院長會參加嗎 |
| 00:09:58,630 | 00:09:59,310 | 當然啦 |
| 00:09:59,310 | 00:10:03,670 | 請召委也一起來共襄盛舉 |
| 00:10:03,670 | 00:10:04,949 | 好謝謝院長 |
| 00:10:04,949 | 00:10:05,829 | 謝謝主席 |
| 00:10:07,469 | 00:10:09,310 | 好謝謝吳林華召委 |
| 00:10:09,310 | 00:10:09,949 | 謝謝院長 |